Learn about our mission, history, and programs.

Our Mission

The Caregiver Club® aims to improve the lives of individuals with Alzheimer’s or other related dementias by supporting their caregivers. We achieve our mission by offering programming, resources, products, supported outings, and a sense of community for the caregiver and their companion with memory loss. 

We are a tax-exempt organization under Section 501(c)(3) of the Internal Revenue Code (Tax ID number 87-3894325), and your gifts are tax-deductible to the full extent of the law. View our 501(c)(3) documentation PDF HERE. 

To both of us, family is everything! Our family is full of aunts and uncles, second cousins and cousins, great aunts and uncles, and even great-great-grandparents. Our family is loving and full of energy. As first cousins, we grew up experiencing this great energy and love. We celebrated birthdays and holidays together; we welcomed children and cried over the loss of relatives. It is hard to describe the closeness our families have. Our individual families and larger extended family bring us great joy. So when Jodie’s mom, affectionately called Mamie, was diagnosed with Alzheimer’s dementia in 2017, the news hit hard for not only her immediate family but her extended family as well.

While Jodie’s nuclear family struggled to make sense of the diagnoses, Alicia’s dad, known to his grandchildren as Poppy, was beginning to deteriorate mentally. He presented differently than Mamie, and while visiting doctors was ongoing, it was hard to diagnose his condition. After years of tests, medications, and specialists, he was finally diagnosed with Frontotemporal dementia. Both of our families were rocked to the core. We were now navigating a space we had never been before. We struggled and continue to struggle separately but we also struggle together. We can share experiences but we have different paths ahead of us.

Alicia and Jodie both have first-hand experience of living, caring, and loving someone with dementia or Alzheimer’s, and so The Caregiver Club® was born. We want to make life easier for caregivers by providing support, resources, and hope. At the core of The Caregiver Club® we want to be a positive voice for dementia.

Margot M. Condie was born in February 1941 in St. Louis, MO. She has a contagious smile and laughter that is infectious. She married her neighborhood sweetheart at 19, and they have been married for 62 years. Together they have five married children, 21 grandchildren, and one great-grandchild. Family is at the center of Margot’s life. Margot, affectionately known as Mamie to her family, has been a lifelong caregiver. Selflessly caring for others is what Mamie does best. From rocking her grandchildren to sleep to supporting friends, Mamie showers people with love, support, and generosity.

Grace and beauty encompass Margot as she transitions into her later years. Her mental abilities began to change, and she was diagnosed in 2017 with Alzheimer’s dementia. This diagnosis forever changed Mamie’s life as she went from caregiver to carer. Even though there were excellent caregivers and love from family and private care, Mamie eventually needed 24/7 memory care support. As a result, Mamie was moved to a memory care facility at the start of Covid 2020.

To date, Mamie enjoys looking at pictures, walking with her baby dolls around the garden, and laughing. She holds your hand tight as she smiles and laughs.

Born on February 26th, 1944, Patrick was destined for great things. As a boy, Pat worked hard for the family business, eventually becoming the company’s president. Pat’s hard work and love for his employees and clients had a lasting impact on the company he ran for decades. Personally, Pat found love and married his wife in 19XX and they settled in St. Louis. Together Pat and his wife have three children and ten grandchildren. Prior to his dementia Pat enjoyed playing John Denver on his guitar with his family, golfing with friends, and hunting Missouri wildlife. Not a day went by that Pat was not training or loving one of his many dogs or even the neighbor’s dogs. An avid outdoorsman, Pat took great pride in his gardens and landscape design. To friends and family Pat was admired and loved for his larger-than-life fun-loving personality.

This larger-than-life man began to change in 2018. His love for golf and interest in his dogs, hunting, and gardening began to deteriorate. Pat and his devoted wife spent years in and out of doctor’s offices trying to find answers to their questions. Finally, in 2022 Pat was officially diagnosed with frontotemporal lobe dementia. Pat’s frontal lobe continues to deteriorate, bringing on inappropriate behaviors that can be stressful for his wife, family, and caregivers. However, even if some aspects of Pat’s personality change, he remains light-hearted and joyful. He is a blessing to his family and friends.

The Caregiver Club® will forever be grateful to Pat, for, without his frontotemporal dementia, we would not have been inspired to create our caregiver cards and thus start our organization. Today you will find Pat out walking with his wife, having an ice cream cone, or humming a classic country song.